page's background music is the elected theme song of Ron's
autism support group (FCAPSG): "If We Hold
On Together", theme song of the
'The Land Before Time', composed by James Horner, Lyrics by Will
sung by Ms. Diana Ross The mp3 file is courtesy of
Point on images for alternative text
Turn on your
Read Jun & Lucy Adea's
beginning journeywith autism.
You may enlarge Text Size by
clicking your browser's VIEW menu. Some browsers may not
UPDATES -2017 Mama's notes from Facebook: Luchie Carolino Adea February 10 at
2:45pm · Mississauga · Our PI trip always includes visiting relatives and
felt so blessed with their love... ❤❤❤😘😘😘.... "thank you so much for all your
time and special treat...love you all.."
Ron and Chie...Jan.30-Feb.4, 2017w -When In Manila added a
new video: Angels Walk for Autism 2017.Like Page
February 8 at 11:01pm · More than 24,000 people came together for a cause.
Here's what happened at Angels Walk for Autism 2017 :)
(Full feature here-
Phone update from Medical City Feb 4 to Mississauga:
The Autism Philippines Angels Walk Philippines 2017 last
Sunday was Ron's monumental visit to the Philippines. Ron performed with Thara
Marie, featured singer, at the this year's
Angels Walk Autism Philippines with special song 'The Impossible Dream'. We met,
made friends with Thara's mom and family
and friends (photos at my FB timeline). As always we were again together with
forever friends Mema and Paloy Cagayat and their
son Franco. Kuya Emil and family came too. However every great event always
happens with preview of problems....you guess it!
Ron had a big meltdown. You see, he was admitted to the Medical City 3 days
before the MOA big event. Ron contacted an e-coli
gastro infection....everything was fine in the hospital he was enjoying the
visits of relatives and friends (photos bottom of this page).
He was ready to be discharged by Saturday....and he was sure he would be home to
get ready to go to the Mall of Asia for the
show at 3:30 a.m. on Sunday..... can you imagine there were 22,000
(autistic) performers at the show? They had to line up in the
stadium at dawn for the 1 pm show . Saturday afternoon at the hospital, Ron was
getting very anxious to be discharged. "Where
is the doctor, Mama?" Waiting is not compatible with Ron's level of patience.
Waiting in busy traffic, waiting with slow Internet are all
potential for 'meltdown'. Waiting for the doctor to officially discharge him,
"Mama, we have to go!"...jumped out of bed, flipped away
the IV tube and ran from the room to the hospital lobby. As always I was running
after him trying to calm him down. I could see Ron
was trying so hard to control his tantrum, he was so wonderfully behaved the
whole trip, he showed patience, he listened to me and
obeyed every rule... napakabait na bata! Finally we were on our way home that
night to prepare for our drive to Mall of Asia at 3:30
the following morning. Once we got there Ron was happy, cool, calm and
excited to perform. At Medical City
TY very much, Tito Jacob and Tita Vicky Dalay
Snobbed hospital food!
At the Mall of Asia, Sunday morning, Feruary 5
Waiting to perform.
Nica, Thara, Ron and Franco Cagayat (More photos bottom of
A balik-visit is always highlighted by
visits to relatives and friends:
Kuya Elmer and Dada Du's Paete Angels, Emyline Bagu and Emcee Baldemor at
ancestral house celebrating Dada Du's Jan 30th birthday in heaven
cousin Elma Baldemor(more photos below)
OUR SON, RON MICHAEL
is a child with
'special' needs. "Every child is unique, admire their ability"
A quote from the portrait
of B. K.Lawes.
This quotation inspired my husband and I to look for
and pursue Ron's talent. In
this page we share you our special son,
Ron during his early years. This story was written for the
Filipino-Canadian Autism Parent Support Group
my 13th Birthday
photo at my party
with close friends
beginning and neverending journey of a God-given life,
filled with hope and challenge, daunted with fears
but always... there is an answer, wisdom coming from
everywhere. We are blessed!
Ron is a 9-year-old autistic boy. He was diagnosed at the age of 3
Hospital for Sick Children
then on started his journey into the world of autism.
The hospital's Children Development Centre (CDC)
have made significant efforts in extending assistance to Ron's development program. CDC made recommendations to the
Metropolitan Toronto Association for Community Living to send a resource person at home to assist us in creating an individualized training program for Ron. With the knowledge and support of CDC the
Hannen Program and Ron's participation in a Nursery School in Toronto, we saw improvement with Ron. We discovered that Ron has a
very strong desire to learn.
inside the story for larger
view of photos] (Photo: Ron with Nancy Bokma,
his Nursery special teacher)
Ron went to
Bond Street Nursery School in Toronto.
A structured program was put in place for him. People involved with him worked as a team which was to our great advantage. CDC then referred us to the
Geneva Centre for Autism. With their wide array of experience, their involvement has placed Ron's developmental needs in perspective and context. Unfortunately, the
Metropolitan Toronto Association for Community Living, due to cut-backs, stopped their involvement when Ron was ready to enter the
Catholic School Board system at age 4.
Ron was enrolled at
St. Michael Catholic School in a regular class. Ron
adjusted easily in
the mainstream setting.
He was doing very well and when he was ready to enter Grade One the school told us that Ron would be transferred
to another school, in a different placement-- in a special class. We were very afraid for Ron with this persuasion of transfer and we felt very rejected. We took our time making the big decision. We continued our search for other schools and found a different placement at the
Holy Name Catholic School.
We went to visit the Holy Name Catholic School. We were given a chance to observe the special class at the new school. We felt good in what we saw. Sometimes change is for the better. We were very impressed with the special class teacher and the other 3 ERW who worked there. Ron had a very successful Grade One in the special class. Ron enjoyed his Grade One experience. There were many integration programs for social and academic purposes. Ron enjoyed the many field trips to the parks, beaches, the zoo, Centre Island and other fun places.
By this time,
it seemed there are very few schools downtown
accepting students with special needs. We started
combing the GTA months before Ron was to finish Grade One.
We found a new school ready to open the following
year. It has facilities for special needs pupils.
Right after Ron finished Grade One, we moved from Toronto to Mississauga where we bought our first house.
Just around the corner to our house is the new
school. This meant for Ron to be moving to a new school again. At this point Ron had been to 4 schools already. Ron is now going to
Fr. Daniel School in Mississauga near where we live. He has a wonderful ERW and with her support Ron is doing very well indeed in the mainstream program. He looks forward going to school everyday. He even likes studying French. We discovered along the way that Ron has an interest in music. We made
him take piano lessons. It's sort of an experiment at first and much to our
surprise became a huge success. Ron's piano teacher has no experience with
autism but with her open-mindedness, understanding and need I say...Patience!.. Ron progressed so fast learning to read and play music pieces.
We are amazed and very proud of Ron's ability to play the piano. We then, enrolled him to a summer school of
Music Therapy. Music therapy is the use of music to achieve goals such as cognitive, social, emotional and physical functioning level through the use of the melody, dynamics and rhythm of music. Ron's music therapist utilized techniques such as singing, chanting, improvising, listening and exposing Ron to different musical instruments. The primary goal is to help Ron achieve a whole health of mind, body and spirit. It's such a fun and enjoyable challenge for him.
He attends Music therapy at
Express Yourself in Burlington. We
believe every child is unique. One therapy may work wonderfully for one child or may have no effect to another. It's always been a trial
and error type of thing. We find music therapy to be a very productive way to facilitate self-expression for Ron. It provides a structured
multi-sensory experience, too. Besides there is the saying that Music
is timeless and soothes the soul. It is simply impossible to predict
what life will be for any child with autism when he or she becomes
One thing for sure, their progress depends largely on the commitment and hard work of their parents and professionals. Advocacy by parents, professionals and organizations is the only guarantee of a better future for all our special needs children. Meanwhile, let us think of positive things rather than negatives when raising our special needs children. Let us not mourn for them but instead let us truly rejoice, for too often we do forget in our day-to-day struggle and frustrations with them that more so than everything else, in raising a child with autism there is also HOPE beyond limitations.
FIVE YEARS AFTER
God has been so good that Ron shows a tremendous improvement. Recently, he just graduated from elementary at
Fr. Daniel Zanon School in Mississauga. He did very well in school, in spite of his handicap. Although there are still bad times beyond his control, he's still able to act appropriately most of the time. School staff were very supportive, they made it sure Ron will always be in his good behavior. They were very helpful and innovative in handling him. His school mates were all very understanding.
At the same time we keep him busy attending our own support group,
Filipino-Canadian Autism Parent
Support Group, which somehow
filled some of the gap in his social life.(Photo at right:
FCAPSG Choir at practice) The
started when 2 parents who attended an autism symposium at the Metro Convention Center. That was in year 1996, both their families met and invited others to meet to form this alliance group. And from then on it grew bigger in number of families living with children with autism. The group's main objective is to help each other cope with difficult situations, share whatever knowledge and experiences encountered in daily living, go places, like Ontario Place, Ontario Science Center, Canada's Wonderland, Cherry beach, parks and Niagara Falls to name a few. We celebrate Valentine's day, Easter Sunday, Halloween and Christmas Time with big parties.
We let these special children feel that they belong, although they're often mistaken as hard headed individuals (which is the usual misconception), they are also part of the total community; that they too have the privilege of enjoying every season of the year that everyone of us are enjoying. We let them feel that they are also "normal" children, special children of God.
FCAPSG is supported by
(West Region), since most of the families live in west end, they let us use their centers for us parents to be able to connect to each other. Their utmost generosity has kept the group intact. Their understanding has been the driving force that made our group united.
We are also fortunate to receive funding from the Ontario TrilliumFoundation, which we were able to use for our activities for children.
We were granted funds to purchase instruments for our choir group. Parents, siblings and kids with autism formed a choral group to share their talents, and give entertainment to others. Ron, on the other hand, has represented the group to other social functions, sharing his talents by performing in various groups, community organizations, both locally and internationally. He performed in a fund raising event at the
Autism Society of the Philippines, Laguna Chapter, at Los Baños, Laguna last year. (Photo
at right: With his guests after the concert)
Ron has been very close with other kids in the group. It made him more sociable and more aware of his being a kid with a special needs. In spite of the individual member's hectic and busy schedules, the group meets every week to plan for its activities, practice the choral group and sometimes, just for the sake of being reunited and having fun with the other families. With all these support from friends, families and organization, we feel very lucky.
Ron continues to develop his musical talent. After moving to Mississauga,
we found it
very difficult to continue his piano lessons in downtown Toronto. We decided to enroll him in
Merriam School of Musicin Oakville. We were very
fortunate again to have
found another teacher, who, aside from being a concert artist
herself, is a very
understanding and excellent teacher. After only a year of being in her
class, Ron was accelerated from Level 5 to Level 7. He has been more interested and
very enthusiastic in his lessons, not to say that he was given a privilege to use the grand piano in his lesson.
He was given a chance to compete with kids in that school, and we are proud to say that he
got 3rd place in the last competition
Another source that we are currently receiving is the behavioral therapy from
Behavioral Peel Region.
They help us on techniques and approach whenever the tantrums and certain behavior occur. With the use of cue cards and some social stories, it brings improvement. We also give appreciation to
Reach for the Rainbow,
who gives Ron's placement every summer camp. They provide one-on- one support for Ron, too. It was such a great experience for Ron to go on outdoor camp as well as indoor camp.
He also attended summer camp from the
ASO (Autism Society of Ontario)
(Photo at right: Guest performer at a Kerry's Place event)
They give him a chance to meet other special needs individual from all walks of life. He has the privilege too to be one at the social group organized by the Geneva Center and Kerry's Place for Autism. This one-on-one social skills he attended made Ron a better person. Not only the children were taught "how-to" skills but the parents and caregivers, as well. We learned a lot form the workshops, seminar, symposiums sponsored by the
Geneva Center for Autism
Lastly, Ron has been lucky to have cousins, uncles and aunties, grand-parents and friends from both sides of our families,who are very understanding and caring and always think what is best for Ron. He is such a very lovable son, always have a helping hand to anybody, and a very friendly guy. Though life is not always a bed of roses, there're still
a few and never ending ups and downs in our daily lives but we do believe and always think that we are the chosen parents to be the protector, the caregiver of these little angels sent from above. Written by
Romeo (Jun) & Lucy (Chie) Adea -
From Ron's parents, thank you all so much
for your kind interest!
Hello, I am Dada Lee. I was Ron's live-in caregiver from the start
he was diagnosed with autism until his Nursery schooldays. Ron
was a beautiful baby one would immediately fall in love with.
Taking care of him everyday as an autistic child was a rare
challenge, worthwhile and unforgettable life's experience. For me, the most
difficult part of my life with Ron during his baby years was my inability to
know exactly what I was supposed to be there for him. Because he was different,
and I am not his mother, my greatest fear was not knowing if what I would be
doing for and with him would be the right thing. I was always very aware with
the fact that how I take care of him would shape his future life. I was very
uncomfortable knowing that my mistakes could direct Ron's growth as a human
being to all the wrong ways. This was a great fear where I needed God's help
But thanks to the 'special people'
Ron's teachers, assistant teachers and the home-visiting
resource teachers and speech therapists, all my fears turned
into unrealities and taking care of Ron became a joyful
challenge for me and for Ron everyday. Now that Ron is a young
adult I have developed new fears for him, for me and for the
rest of the world around him. Because I don't live with him
anymore and his parents are now carefully and closely
supervising his road to adulthood, becoming more self-sufficient
and independent, I have lost some of my sense of relating to
him. I see him excelling in school and in his music and it
becomes easy for me to see and treat him the same way I treat
the non-autistic kids.
This weekend we had a family get-together in
Niagara Falls, USA. My other grandnephews and nieces who have
been in close 'social' relationships with Ron were there. Kids
are kids and it is easy to get impatient with them during the
normal course of the day while enjoying the family bonding with
them during family events.
Ron spent most of this long weekend with his
cousins, without his parents,in DarienLake Theme
Park resortin Buffalo, New York. Ron's cousins were
taught about why Ron is different and they all have been very
understanding and supportive of him during their regular
interactions. When the entire family regrouped to a birthday
celebration dinneron Sunday, I asked Ron how he'd been
away from his mom and dad. He said, "Mama& Papa
are away. Where is Mama?" Then he ran looking for his mom. Then,
I asked one of his cousinshow Ron was with them at the
RV and at the park. The reply was: "Okay lang po, pero
nakakainis po!" (Ron is okay but he is irritating). (Photo at
right, Ron with his 4 cousins at Darien Lake- The QC kids:
from left- seated is Christian, Ron, Ryan, Cheenee and
injured & chaired Eugene Jerome)
I was struck somehow with that
honest-to-goodness reply and made me reflect immediately on how I
myself behaved with Ron that weekend. A tinge of sadness
overcame me when I realized and remembered I was also very
impatient with Ron. As I did find him irritating, too. I have
become totally unaware of the 'autism' in Ron as a person. I was
treating him exactly the same way I was treating his other
non-autistic cousins who could also be equally irritating.
Reality: Ron is different and will remain
different all his life. We need to be jolted back to this
reality everyday of our lives to remember this so we will
continue to learn and know how to support and assist him on this
autistic journey to adulthood. This will be an early as well as
late wake-up call for us in Ron's family.
I salute from the bottom of my heart Ron's
parents for their steadfast and unconditional love and a sacrifice they accept
from the deepest corner of their hearts and prevail upon as they
now (and forever will) closely supervise Ron's life every moment of the day
as he continues to grow older, one day at a time. 'A new day, a new fate!-- a
This year Ron has completed his
7 years of high school at
St. Joan of
Ark Catholic Secondary School on Thomas Street in
Mississauga (Winston Churchill Meadow branch). Ron is now
closely supervised by her mom 24/7 who has retired from her
full time job. Ron's special teacher from his high school
continues to assist Lucy and Jun in Ron's current transition
and finding a placement for him as an adult.
He has started
working with supervision during his last 2 years in high
school. He worked at Shoppers Drug Mart and at the Old Navy
Department Store. Since after graduation he continues to
play the piano for the patients at the Seniors nursing home
where he also had the chance to work in the Housekeeping
Dept, 3 times a week, as a volunteer. He continues to attend
to his regular piano lessons under his mentor from the
Miriam School of Music in Oakville.
date, January 2014, he continues to bond with his former
classmate in high school. He connects with his many Facebook
friends. He continues to accept invitations to play the
piano as a professional pianist. He remains close with his
cousins here in Canada and in the Philippines. He has
completed his second CD "A Night With Ron" an album of
soothing classical piano pieces which was his repertoire at
his special 'legacy' concert at the St. Joan of Ark high
school's Communications Program. This event occurred in
communications has greatly improved. His streaming
conversation is still slow but much more continuous and
smooth. He still shows marked difficulty in his social and
sexual behavioral relationship. He understands are now more
subdued, shorter in length and less often. His doctor has
put him on an anti-anxiety medication during his last year
in high school. When asked how he feels with the medication
now, Ron said: i like it. My medication make my brain stop
from too busy all the time.
Resources and a (Video below)
Who will care
for children with autism when they're adults? Limited
resources and varying needs present a daunting challenge as
Ron's parents are discovering.
Who Will Care for Children
With Autism When They're Adults?
By Serena Gordon HealthDay Reporter
FRIDAY, Aug. 23, 2013 (HealthDay News) -- The vast majority
of youngsters with autism will grow up to be adults with
An estimated one of every
88 children in the United States has an autism spectrum
disorder, according to the U.S. Centers for Disease Control
and Prevention. That means that 45,000 to 50,000 kids with
autism turn 18 each year, says autism researcher Paul
Shattuck, from Washington University in St. Louis.
"This is an impending
health care or community care crisis," said Dr. Joseph
Cubells, director of medical and adult services at the Emory
Autism Center at Emory University in Atlanta. "The services
that are available vary from state to state, but often the
resources just aren't there."
Public schools are
required to provide services to people with an autism
spectrum disorder until they reach age 22, according to the
National Alliance on Mental Illness. After that, the
responsibility shifts to the person with autism and family
members to find educational or employment opportunities and
appropriate living arrangements.
But experts note that a
shortage of necessary programs for adults with autism
already exists and is likely to worsen as the increasing
number of children who are being diagnosed with autism
spectrum disorders grow into adults.
One of the biggest
challenges in providing services to people with an autism
spectrum disorder is that the needs change from person to
"We say autism as if it's
a single thing, much like we say cancer," Cubells said.
"But, within the general category of things we call cancer
are brain tumors, lung tumors, pancreatic tumors, and each
requires different treatments. Autism is very individual. It
varies from one extreme where someone needs custodial care
for their entire life to the other extreme where someone is
a highly functional, successful person who may be regarded
as being a little quirky," he explained.
"There are some common
themes," Cubells said, "but there's really nothing that
applies to every single person."
Take higher education, for
instance. An older child who's on the higher-functioning end
of the spectrum may be able to go to college, but that
presents challenges as well.
"There's often a
substantial mismatch between verbal skills and performance
skills," Cubells said. "You can be highly intelligent and
able to do complex math and abstract reasoning, but you
don't know how to ask someone out for coffee. Having to make
friends, schedule meals, and get to class without help can
be like hitting a brick wall for a lot of people on the
spectrum. I often tell people with Asperger's that they have
to learn in words what most people learn intuitively."
He said a college's
disability services office could be helpful in some cases,
as could peer mentorship programs that pair someone with
Asperger syndrome, for instance, with someone of the same
age who's learned about the condition.
For those who don't go to
college, navigating the world of employment can be a
significant challenge. Both Shattuck and Cubells said that
while some employers might be understanding, and some might
even make certain accommodations, what employers are most
concerned with is their bottom line -- making it all the
more important for people with an autism spectrum disorder
to be placed in jobs that match their skills and interests.
A study done by Shattuck
and his colleagues found that people on the autism spectrum
are more likely to choose a college major in science,
technology or math than people without autism. And, these
types of careers may be just the ones where people on the
autism spectrum find the most success.
"People on the spectrum
can focus on the details," Cubells said. "In jobs that would
be hideously boring and tedious to most of us, like jobs
where you spend hours alone, having a social deficit can be
a real strength." And Shattuck pointed out that people with
autism aren't likely to waste work time looking at Facebook
or socializing with co-workers.
But the overall picture
isn't rosy for adults with autism. "A lot of parents
describe the transition to adulthood as like driving over a
cliff," Shattuck said.
In another study by
Shattuck's team, the researchers found that more than one in
three adults on the autism spectrum had no engagement in
education or employment for the first six years after high
Those who are profoundly
affected by autism generally end up staying with their
families. Expensive, private options are often available but
out of reach for many families. Services for housing options
or vocational training are "very hit-and-miss," Cubells
said. "There's a tremendous need for training about autism
in the helping agencies."
For families with children
on the autism spectrum, Shattuck said it's never too soon to
start thinking about getting the child ready for the
transition to adulthood. He suggested starting a
conversation with your child's special education team at
school during 8th or 9th grade to allow adequate time to
investigate available resources.
Autism Speaks Adult Services Resources
Adults living with autism often have difficulty finding
information about programs and supports that would allow
them to live as independently as possible. Autism Speaks
Housing and Adult Services initiative will focus on
resources that impact all facets of adult life including
employment, housing, and post-secondary education.
Adult Autism & Employment A guide for vocational rehabilitation professionals,
including a synthesis of existing literature, promising
practices, and previously unpublished insights and
suggestions from a national expert on autism & employment. A
Product of the University of Missouri's TACE Center.
APSE: Advancing Employment, Connecting
APSE is the only national organization with an exclusive
focus on integrated employment and career advancement
opportunities for individuals with disabilities. Our new
initiative, HR Connect, offers consultation services to help
businesses reach out to and partner with one of the
strongest labor and customer pools in the country: the
disability community. APSE has chapters in 35 states and the
District of Columbia. Our members come from all 50 states
and Puerto Rico, as well as several foreign countries.
The Art of Autism The Art of Autism is a collaborative project which finds
places for artists, poets, authors, and entertainers on the
autism spectrum to be seen and heard. We offer educational
workshops, art exhibits, poetry readings, book signings, and
entertainment events. Our newsletter of opportunities goes
out to over 150 artists and poets on the autism spectrum.
ASPEN: Asperger Syndrome Education
Network ASPEN is a nonprofit organization that provides
education, support and advocacy for families and individuals
affected with autism spectrum disorders.
AUTISM HANGOUT Autism Hangout is dedicated to bringing timely, relevant
news, resources and hope to those affected by autism. AUTISM
HANGOUT provides the Autism Community with an online
resource that compiles news, knowledge and personal
experiences on how best to thrive with autism.
Autism In Love (Video) A feature length documentary exploring how adults with
autism fall in love and manage romantic relationship. Told
through personal narratives, the audience is faced with the
challenges, triumphs, and the unique human experience of
finding and navigating love.
Manila direct Toronto PAL gals
tita jean fadul arce grand piano
lucky for me ate pewee dulay petines my
stewardess PAL Vancouver